Diseases come in a wide variety and many have their own unique names that most of us never heard until a diagnosis.
Respiratory onset ALS has two major characteristics which present early. Difficulty breathing. And camptocormia.
Camptocormia, also known as bent spine syndrome (BSS), is a symptom of a multitude of diseases that is most commonly seen in the elderly. It is identified by an abnormal thoracolumbar spinal flexion, which is a forward bending of the lower joints of the spine, occurring in a standing position.
This classification differentiates it from a similar syndrome known as kyphosis. Although camptocormia is a symptom of many diseases, there are two common origins: neurological and muscular.
Bent spine syndrome. My spine is bent in the lower back. I cannot stand up straight. Legs, feet, and balance are strong. Shoulders, arms, and hands are not too bad, either.
But not the back.
That means I need a roller walker to go from bedroom to bathroom and back, or living room to bathroom and back.
What’s the commonality?
Trips to the bathroom. And back.